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NLPatients with sarcoidosis are often confronted with inadequate assessments of their ability to work. Important symptoms—such as fatigue, cognitive problems, and pain—are frequently overlooked, while evaluations rely too heavily on lung function tests. A global group of experts and people with lived experience (177 representatives) call for change. They advocate for a patient-centred, holistic, and […]
Benefits of E-health based coaching of physical training in patients with ILD
With the support of an activity tracker, sarcoidosis patients managed to improve their exercise capacity and reduce fatigue. It is therefore recommended that patients be encouraged to wear an activity tracker to stimulate exercise and try to reduce fatigue. The results of the study described below have recently been published. Follow the link. Benefits of […]
King’s Sarcoidosis Questionnaire
Validation of the KSQ in a Dutch sarcoidosis population Sarcoidosis is a heterogeneous multisystem disease with different clinical phenotypes. Sarcoidosis manifests most commonly in the lungs, but can affect skin, eyes, lymphatic nodes and other organs as well. Quality of life (QoL) is impaired in the majority of patients with sarcoidosis due to symptoms as dyspnea, […]