The Small Fiber Neuropathy Screening List (SFNSL) is © copyright of the ild care foundation in all languages. Use of the SFNSL is permitted under the following conditions:
General Use
- Use in clinical settings is permitted without restrictions, unless the SFNSL is implemented in an electronic patient record system, in which case prior permission from the ild care foundation is required.
- Use in clinical research is permitted, provided that the ild care foundation is acknowledged in the manuscript as follows:© SFNSL (Small Fiber Neuropathy Screening List): ild care foundation (www.ildcare.nl; with logo included). In addition, “SFNSL (Small Fiber Neuropathy Screening List)” must be included as a keyword in the final publication.
- A PDF file of the final publication must be sent to the ild care foundation (info@ildcare.nl).
Commercial and Industry-Sponsored Use
- Use of the SFNSL for research initiated or financially supported by pharmaceutical companies, industry, or institutes requires a license. A one-off fee of €500 per questionnaire per language applies.
- Any company or healthcare setting wishing to use the SFNSL (or adaptations) for commercial purposes is also subject to a one-off fee of €500 per questionnaire/translation to compensate for development costs.
- For further information, please contact: info@ildcare.nl
Translation and Validation Requirements
Translation of the SFNSL may only be undertaken by the ild care foundation or with its explicit permission and must comply with the following conditions:
- Copyright remains with the ild care foundation at all times.
- A validated translation process must be used; for study use, a harmonized approach may be applied, followed by full linguistic validation.
- The final validated translation and supporting documentation must be provided to the ild care foundation.
- Translations will only be made available via the ild care foundation website and must follow the standard layout and format.
- No costs may be charged to the ild care foundation or its collaborators.
Publication Requirements
In the event of publications arising from the above-mentioned studies/projects, the Principal or Sponsor Investigator shall acknowledge the ild care foundation by including the following sentence in the manuscript:
© SFNSL (Small Fiber Neuropathy Screening List): ild care foundation (www.ildcare.nl). Furthermore, “SFNSL (Small Fiber Neuropathy Screening List)” must be included as a keyword in the final publication.